Sunday, August 27, 2023

church hop

Today was probably our family's last time attending as members of the church that we've gone for 23 years. My emotions about this are not easy to articulate.

We're not leaving because of any hurt or any issues that we have with church leadership. I actually really like the pastor, who will be celebrating his first year there in a couple of weeks. However, we're doing a trial move for NJ and CD.

Both of the kids have had anxiety at the church since before our new pastor started, each for their own reason. Much of NJ's anxiety stems from the fact that he understands that he's different from most of the rest of the youth, and he had a meltdown a while back that he's embarrassed about. There's a church in town that has a program during Sunday morning service that is targeted to teens and young adults with special needs. NJ has been going to their special needs youth group meetings on Wednesdays, and has done well there. So, we're going to attend that church for a bit to see how well the kids do in that setting.

There are only a few reasons that I would be okay with switching churches. While I'm not always the best at being a friend to everyone in church, I do believe that we should strive for this to be like a family. Over the past few weeks as I've been letting people know that we're leaving I've been feeling like I'm abandoning folks.

I explained our situation to our pastor, and to his credit he has been extremely supportive of this move. I know that this has to be hard to see congregants go elsewhere, regardless of the reason. I wish I knew how to repay this kindness.

We'll be visiting family over Labor Day, and so the week after that we'll be doing something as a family that I haven't done in more than half of my lifetime and visit a church with the potential of making it our new church home. It's my hope that whether this is the right move becomes obvious shortly.


Saturday, January 14, 2023

neurotypical

Having a teenage son on the autism spectrum has given me pause to re-evaluate a lot of interactions that I've had with other people throughout my life. One example is someone I worked with for a month who I blogged about years ago who didn't understand who would be interested in a certain type of movie.

I remember a specific person who frequently visited someone in my dorm in college who I now believe was on the spectrum was generally kind, but also made me uncomfortable because of some of the very black and white statements and positions he took. I prefer nuance, and this individual did not.

As a parent who is neurotypical I feel like I'm equipped to parent a neurodiverse child, but that all of my instincts are wrong for parenting a neurodiverse child, and soon young adult. His logic frequently runs counter to mine, and we're frequently blind to what's important to the other or what the other is trying to communicate.

While things are definitely better now, our problems communicating and managing new hormones had us in a bad spot a year ago. We had almost daily meltdowns--true meltdowns--and it took a lot of time and effort to get to where that doesn't happen so regularly. That experience has really driven home to me how much I don't understand about the neurodiverse brain.

So much of what I learn now about people who were considered eclectic makes more sense now, and what drove things like the popularity of electroshock therapy and lobotomies in the past.

We've been working with therapists for a while, and they have always been optimistic about the future. However, the most frustrating thing is that we don't know what a realistic future for us and for NJ holds, and so it's hard to put together a plan to meet specific goals.

There really isn't a way to wrap this post up because we're in a very open-ended state at the moment. I'm hoping for the best, though.